HIV/AIDS LONG-TERM SURVIVOR * YOUTH EDUCATION * ADVOCACY * ACTIVISM * RESOURCES
An AIDS activist is someone who campaigns for the rights and well-being of people affected by HIV/AIDS, and for a societal response to the pandemic. AIDS activism has taken place since the 1980s, and has involved a variety of efforts, including:
AIDS activism began in the early 1980s in response to the AIDS epidemic in gay communities. One example of AIDS activism is the work of ACT UP, an organization that disrupted the FDA headquarters in 1988 to demand changes to the drug approval process
For over 40 years, I’ve fought not just for my survival, but for the survival of others. From the early days of the AIDS crisis—when fear and stigma ran rampant—to today, I’ve used my voice to educate, advocate, and demand action. Activism isn’t just what I do; it’s who I am.
~ Bob Bowers
Bob Bowers, also known as "Da Pirate" or "One Tough Pirate," is a long-term survivor of HIV/AIDS, having lived with the virus for over four decades.
HIV long-term survivors include several groups:
- People who have had HIV for 10 years or longer
- Adults with HIV who acquired the virus as babies
- People who were diagnosed with HIV before the availability of antiretroviral therapy (ART) in 1996.
"I have survived HIV/AIDS for over four decades, but some of my deepest wounds were inflicted long before my diagnosis."
I just wanted to tell you that your site brought both tears to my eyes, chills to my skin, and peace to my heart. I have not been directly affected by AIDS on a personal level, however, being a nurse, my final goal is to be involved in the fight for research and a cure. I never look at people's websites, but something told me to check yours out. I have been directly affected by cancer several times which is another type of research I'd like to do, but I feel like the Lord is pushing me to work with HIV/AIDS patients and I'm not really sure why. And I love your saying Compassion is our cure.... b/c it is the truth in this world through and through. I just really wanted to say I think it's awesome what you are doing, and I wish more people would be on the proactive side of this fight.
~ Erin
You have to be one of the most amazing men. This just shows people that you can't tell from the outside someone is living with AIDS. Protect yourself and others. I love how open and honest you are about your life. And how AIDS hasn't made you lay down and die.
~ Bren
"Long-Term Survivors are defined as having a HIV/AIDS diagnosis before 1996. They share those earliest and darkest years of the epidemic when there were no effective treatments. Effective treatments were available in 1995-96. Protease inhibitors transformed HIV infection from a “death sentence” to a more chronic but manageable condition."
"My personal ambition is to inspire and motivate everyone to be victorious in life's challenges. In this process I educate about the cause of HIV/AIDS, the consequences of having it, and how I have survived for 42 years."
~ Bob Bowers
"The world may have moved on, but HIV/AIDS is still here. I’ve lost too many friends, fought too many battles, and seen too much injustice to stop now. I continue this work not just in their memory, but for those still fighting today."
"I’m not just a long-term survivor—I’m a warrior, an advocate, and a witness to history. I’ve seen the worst of this epidemic, but I’ve also seen the best of humanity. And as long as I have breath, I’ll keep fighting for a world where no one has to face HIV alone."
~ Bob Bowers
Today, over 1.2 million Americans live with HIV, and nearly 38 million worldwide. Once a death sentence, HIV infection is now considered a chronic condition, which once diagnosed can be managed with medication. But there is still much work to be done, education, testing, and access to care remain issues in many places.
Even when HIV is well-controlled, people may develop aging-related conditions at a younger age. People living with HIV are significantly more likely to develop cardiovascular disease than people without HIV. Older people living with HIV also have an increased risk of dementia, diabetes, osteoporosis, frailty, some cancers, and falls. It is common for older adults with HIV to experience mental illness, especially depression and addiction, and they tend to be more isolated, according to the National Institute on Aging.
According to the Centers for Disease Control and Prevention (CDC), of the nearly 1.1 million people living with diagnosed HIV in the United States and dependent areas in 2022, 64% were aged 45 and older.
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Bob Bowers aka One Tough Pirate
www.onetoughpirate.com
Houston, Texas - All Rights Reserved.
Website last updated on March 27, 2025
End HIV/AIDS! Never surrender! Never forget!
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