HIV/AIDS LONG-TERM SURVIVOR * YOUTH EDUCATION * ADVOCACY * ACTIVISM * RESOURCES
Documentary trailer featuring long-term HIV/AIDS survivor Bob Bowers
Mr Bowers. I have recently viewed your documentary film, "The Fire Within". I was moved beyond words. I met you about 5 years ago at San Diego State University and was challenged and humbled by your life. You are truly my inspiration.
~ as reviewed on Amazon Prime
Attending the premiere of The Fire Within at Sony Pictures with Leanne Whitney, the director, was surreal in a way I can’t quite describe. After spending 17 years in Los Angeles, surrounded by the glitz and glamour of Hollywood, seeing countless other premieres and screenings—none of which were mine—it was almost too much to process. I’d been to the big blockbusters, watched films like Die Hard and Terminator on the silver screen, yet here I was, sitting in a theater, not watching the latest action-packed hit, but watching my own story unfold. An AIDS survivor. Bob Bowers. Not a character in an action flick, but me, real and raw, projected for the world to see. It wasn’t on the level of the major Hollywood blockbusters, but it was far more personal—more significant. And having Leanne by my side, someone who believed in the power of my story, made that moment even more meaningful. There I was, a man who had fought for his survival, seeing the story of my journey—and the echoes of those I lost—told on the big screen for the first time. It was both humbling and surreal in ways that still leave me in awe.
The most important part of The Fire Within, to me, is the final dedication to my mom, Carol Renee McCulloch. She was the one who gave me the foundation of love, strength, and resilience, even though I lost her when I was just 10. Through all of the struggles and losses, her spirit has been my greatest guide. To honor her memory in this film, to have her name forever etched at the end of the credits, was the most meaningful part of this entire process. In memory of Carol Renee McCulloch 1938-1973—those words hold more than just a tribute; they represent the enduring love and strength that have carried me through every challenge, every moment of doubt, and every triumph. This film, my story, my journey—it’s as much hers as it is mine. And in the end, it’s her love and inspiration that continues to light the fire within me.
With love and light,
Our mom! Our Angel!
Carol Renee McCulloch 1938-1973
"I watched this documentary one evening by myself. I was always one of those people that did not want to get into drugs and alcohol. I was always the safe one. When HIV/AIDS started popping up everywhere, I did my own research. This movie is like living Bob Bowers life. Watching him live his life with HIV and be able to love at the same time. His wife is amazing. She helps him keep his chin high through all of this and gives him hope. This is a true documentary. I honestly wish that schools would show this movie to kids in MS/HS. It definitely gave me a new vision of the life." ~ as reviewed on Amazon Prime
The Fire Within is a compelling feature-length documentary film chronicling a year in the life of long-term AIDS survivor Bob Bowers. Bob was infected in 1983 at the age of 20 due to a one-time decision to share a needle. He met Shawn in 1990 and in spite of his disease they married six months later. The film was shot in 2000 and features Shawns participation in a 7-day, 575-mile bike ride as she tries, in some measure, to replicate Bobs everyday battles and victories. Gritty, raw and very real, The Fire Within is not only a movie about surviving AIDS; this is a movie about thriving regardless of the circumstances. The film parallels the struggles, challenges, and fortitude of two incredibly passionate, inspiring and vibrant souls.
"A MUST SEE. This film is a powerful parallel of life’s struggles. It is a mix of life, learning, laughter and love. Bob is a true fighter dealing with HIV and it’s day to day struggles while his partner Shawn is challenging herself to ride the California AIDS ride. This movie truly teaches us tomorrow is not promised to anyone and every day is a gift." ~ as reviewed on Amazon Prime
~ as reviewed on Amazon Prime
From Director, Leanne Whitney:
The Fire Within (2002), a feature-length documentary I directed on the subject of life in the face of death—told through the experiences of a man grappling with what used to be a terminal illness—and what remains a leading cause of death for 25-44 year olds—AIDS. The film chronicles a year in Bob Bowers life alongside his wife Shawn's participation in a 575-mile bike ride, as she tries, in some measure, to replicate Bob’s everyday battles and his everyday victories.
Reviewed by Chael Needle
Directed by Leanne Whitney
August Moon Entertainment
Premiering on The Documentary Channel on June 6, The Fire Within is a frank and intimate look at two people who love and care for each other: one positive, one negative, both resilient.
The film, first released eight years ago, follows Bob Bowers [A&U, May 2009], an AIDS educator and activist, as he struggles to find a new combination therapy. His virus is drug-resistant and, as physician Dr. Bisher Akil tells him, he is down to two treatment options. The toll of the side effects, Bob says, has been emotional, spiritual, and physical. Before settling on the couch for the first interview, he vomits and washes up. Vomits again. “Welcome to my world,” he says. Later, Bob details the body aches, diarrhea, myalgia, and the neuropathy that forces him to use a wheelchair. The new combo that he eventually chooses, Sustiva, is causing mental strain; for a while, he sleeps with a gun close at hand.
The director also shows how managing HIV can be a “full-time job,” as Bob calls it. It’s not just taking twenty-four pills a day, as Bob does, or the tax on the body; it’s the work of weighing choices and making decisions; the work of soul-searching; and the work of nurturing a relationship where the other person often acts as a caregiver.
That person is Shawn, his wife at the time, who fell in love and married knowing that she was getting into a “relationship with Bob and HIV.” She was attracted to Bob’s vivaciousness and boyishness; his joie de vivre awakened what had been dead in her and energized her to work through her own “shit,” as she tells it. The film follows her as she participates in the seven-day AIDS/LifeCycle Ride, which is a San Francisco to Los Angeles cycling fundraiser. (The premiere coincides with the start day of this year’s AIDS/LifeCycle.) Though not an endurance athlete, Shawn wants to experience a “hint” of what her husband goes through. Bob works as crew in order to support her. Some days go somewhat well; some not-so-well. Shawn begins to doubt what accomplishing this goal actually means.
By the end, Bob wonders if he should switch to a salvage therapy; Shawn wonders if she should keep riding. Decisions are made, and, as always, Shawn and Bob articulate their thoughts and feelings with the clarity that comes with honest reflection. The director has captured something about resilience—it’s not particularly pretty; it’s not particularly transcendent. Resilience is a day-in, day-out struggle—its beauty comes from confronting the fact that life can sometimes get ugly and wear you down.
The journey to The Fire Within wasn’t just about sharing my story; it was about laying bare the raw truths that define me. It was about showing the world that an AIDS survivor is more than just a statistic or a diagnosis—he's a man who’s lived through loss, pain, and triumph, and who carries the love of his mother, Carol Renee McCulloch, like a torch through every battle. In creating this film, I found a voice I never thought I’d have, and I realized that my story, though unique, is shared by so many others. It’s a reminder that we’re all human, that we all have our fires to ignite, and that we can rise from the ashes stronger than before. Watching my life unfold on that screen was surreal, but it was also a reminder that the fire within—burning with love, resilience, and determination—will never go out. This is just the beginning, and the flame will keep shining for those who need to see it.
" Jefferson Middle School students first notice Bowers' tattoos and muscles. But it's his sensitivity and blunt delivery that get his point across."
"Long-Term Survivors are defined as having a HIV/AIDS diagnosis before 1996. They share those earliest and darkest years of the epidemic when there were no effective treatments. Effective treatments were available in 1995-96. Protease inhibitors transformed HIV infection from a “death sentence” to a more chronic but manageable condition."
Gritty, raw and very real, The Fire Within is a compelling feature-length documentary chronicling a year in the life of long-term AIDS survivor Bob Bowers.
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Bob Bowers aka One Tough Pirate
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Website last updated on March 27, 2025
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