HIV/AIDS LONG-TERM SURVIVOR * YOUTH EDUCATION * ADVOCACY * ACTIVISM * RESOURCES
Over time, I discovered other ways to communicate, ways that didn’t rely on just my voice. My tattoos, my humor, my art, my website—these became part of the toolkit I used to connect, to make people listen, to cut through the noise. Despite the lingering self-doubt, I’ve come to realize that my voice—however imperfect—isn’t only mine. It’s a voice for everyone who has ever felt unheard, unseen, or unworthy. It’s for the kid who thinks they’ll never measure up, the newly diagnosed who feels their world is ending, and for anyone still searching for a spark of hope.
So yeah, at nearly 62 my voice still quivers sometimes. But that’s never stopped me before.
And it sure as hell won’t now.
I wanted to congratulate you on your journey living with HIV... you are truly my inspiration... I think that people often underestimate us... I just wanted to let you know that I am applauding your efforts, your honesty and your fight...I am so grateful to call you my friend... you have touched my heart and opened my eyes...Your openness has shifted my life for the better and you are my hero...
~ Robert
Dear Bob,
I just wanted to thank you so much for coming in and speaking to our class. You really inspired me to do something with my life. Your stories really touched me and made anything seem possible. The way you keep battling really made me remember that there really are good people in the world. I would just want you to know that after you came, you became my hero. The way you deal with your life is amazing. I honestly don't' think I could go through my life like you do, I would give up. If everyone had the willpower you had, nothing bad would happen in the world. I admire that instead of feeling sorry for yourself, you stand up and teach kids like me what it is like. I would like you to know that right when I got home from school that day, I told my parents all about the greatest man I have ever seen. Now every day before I go to bed, I say a special prayer just for you. So, thank you for inspiring me to live life to the fullest like you do. Thank you again for coming in and talking to our class.
Sincerely,
Danny A.
Dear Bob,
Over the years in the social groups I attend to, I can say I met many a person. But not a single one of them has made me take the few moments I did out of my day and revel in your awesomeness. And I've known some people that have had their fair share of shit happen to them. But I spent some time on your site links, and you made me not only commend you for the courage you have, but actually realize what little things I take for granted every day just by being alive. I hope this message reaches you in the BEST of health, and I hope your time on this planet is longer and more prosperous than you ever dreamed it could be. Again, I feel compelled to wish you congratulations on not giving up, and good luck in helping others. I would say don't quit fighting, and don't give up, but I think you already have plenty of motivation and faith of your own. I just hope my few little words fan what blazing flames drive you. Thank you for being such a beautiful human being.
With the utmost respect and high regards,
E. Bojan
There was a time when I would have bet every cent I had on being just another statistic—someone whose name would be spoken in hushed tones, if at all. Another story of someone who didn’t make it. Yet, here I am, still standing, and every day feels like I’ve outplayed the odds.
In 2004, I found myself speaking to a room full of medical students at the University of Wisconsin. I was nervous, as usual, especially since I hadn’t done many university presentations at that point in my years of advocacy. But this wasn’t just a job or another presentation on HIV/AIDS—it was about being of service, about pouring my heart and soul into everything I did.
To break the ice with these bright future doctors, I tossed out one of my “I hope I make you think” moments. With a smirk, I said, “In 1984, when I was diagnosed, if you put Bob Bowers, JFK Jr., and Princess Diana into a pool as to who would have survived (then 20 years later), I definitely would’ve put my money on the Princess, not my sorry ass!”
The laughter was loud and real, and the message landed with impact: life’s unpredictable, and none of us knows exactly how long we have.
What an honor and blessing it is to be growing older and continuing to live and thrive with HIV/AIDS.
Thanks, Lydia
In 2021, I was 260 pounds, barely mobile, and barely holding on. My health was in freefall, and my reflection in the mirror looked like a ghost of who I once was. I honestly thought, “Maybe this is just what it looks like in your late 50s with HIV, heart disease, and decades of wear and tear.” After all, my dad died at 59. I was genuinely 'prepared' and had even saved some of my stimulus money for my cremation. But something inside me still had fight. So, with help—my staff, my service dog, and a whole lot of prayer—I got up. Again... Click to read more about HIV/AIDS and exercise.
Exercise and fitness with HIV/AIDS is more than muscle. It’s medicine. It’s faith. It’s proof that no matter how many times you fall, you can rise again.
" I was five years old when I first saw my dad’s tattoo—a bulldog on his forearm. That image stuck with me, and from that moment, I knew I wanted ink of my own someday. What I didn’t know was how deeply tattoos would become woven into my identity, my survival, and my story."
The AIDS Memorial Quilt is a massive, ongoing community arts project created to memorialize and celebrate the lives of people lost to the AIDS pandemic. Weighing 54 tons and composed of more than 50,000 individual panels, it is the largest piece of community folk art in the world.
Mr Bowers. I have recently viewed your documentary film, "The Fire Within". I was moved beyond words. I met you about 5 years ago at San Diego State University and was challenged and humbled by your life. I live my life in the moment and often your powerful existence reminds me not to sweat the small stuff. Thank you for all of your work and guidance. You are truly my inspiration.
One Tough Pirate
Houston, Texas, United States
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Bob Bowers aka One Tough Pirate
www.onetoughpirate.com
Houston, Texas - All Rights Reserved.
Website last updated on September 7, 2025
End HIV/AIDS! Never surrender! Never forget!
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